The story of a little girl with Short Gut Syndrome

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Follow the story of Clara, a newborn girl living in the UK with Short Gut Syndrome as a result of rare bowel disease. Written by her mum, you can read about the ups and the downs, the medical miracles, and what family life is like with a chronic illness.

You can find out more about our story by browsing our blog posts. To view them, click ‘Clara and the Gutcracker’ at the top of this page or click here.

Always remember, you are your child’s biggest advocate. You can give them the best life possible. Doctors see many patients, but you know your child best. Don’t be afraid to ask questions or stand up for what you believe in.