Follow the story of Clara, a 1 year old little girl living in the UK with Short Gut Syndrome as a result of malrotation with volvulus (her intestines were twisting and as a result the majority of her small bowel didn’t survive the restricted blood supply).

Written by her mum, you can read about the ups and the downs, the medical miracles, and what family life is like with a number of chronic illnesses.

Clara has short gut syndrome, heterotaxy, auditory neuropathy spectrum disorder, and a number of food intolerances.

You can find out more about our story by browsing our blog posts below.

Always remember, you are your child’s biggest advocate. You can give them the best life possible. Doctors see many patients, but you know your child best. Don’t be afraid to ask questions or stand up for what you believe in.