The story of a little girl with Short Gut Syndrome

Follow the story of Clara, a newborn girl living in the UK with Short Gut Syndrome as a result of rare bowel disease. Written by her mum, you can read about the ups and the downs, the medical miracles, and what family life is like with a critical illness.

Below, you can find out more about Clara and see the most recent blog posts. To read all of her story so far, select ‘blog’ from the menu.