Tonight is our first night out without Clara. It's a big milestone for any first time parent. It was a fantastic night - but for the first time "it" properly hit me. Clara is with her Nana, and we have gone with my dad to see Birdsong, my favourite book, the Sebastian Faulks novel, at… Continue reading Birdsong
Doesn't time fly when you're having fun? A week ago today Clara woke up in the morning for the first time without her Hickman Line. She still puts her hand on her chest like she used to when the line was there, but there's no longer anything to grab hold of or pull. Although the… Continue reading The first week without a Hickman Line
I can't believe we are coming to the end of our first week post-Hickman line. It's felt longer than a week - in a good way. Clara's technically almost been off PN two weeks now. Those sterile procedures feel a long way away. The procedure itself was simple - so simple they tried to take… Continue reading Operation #8 Removing the Hickman Line
Just two days ago I wrote about our trip to A&E and how we will be trialling Clara's ability to absorb nutrition via oral feeding before making the decision to stop PN completely. Well a lot can change in 48 hours. Clara's Hickman Line is coming out on Monday!! That means no more PN, no… Continue reading We are removing the Hickman Line!
Monday morning, Clara and I both woke up feeling grand. I even had time for a coffee and a play with Clara before her intravenous infusion was due to end. It was then our usual routine up: once disconnected from her PN, it was time to go downstairs and get breakfast ready. I decided we… Continue reading An A&E trip changed everything
From the minute weaning was mentioned months ago I was keen to get going. Turns out it wasn't as straight forward as dishing up some purée... You can read our first attempt at weaning here. The first food Clara ever tried was an Ella’s Kitchen purée pouch - organic carrot, broccoli, and sweet potato. Clara… Continue reading Baby weaning: a second attempt
We've been at home a week today and life is good! Clara's even had the customary first baby bath in the kitchen sink! We've really settled in as a little family and whilst we are still working out our daily routine, I think we've got the mornings nailed. Breakfast has become one of our favourite… Continue reading Life at home – week one