Tonight is the night. We are trialling Clara on a night without PN to see if she can handle a night a week off going forward. Clara's been doing incredibly well lately, I've almost been too nervous to write it down as I don't want to compromise anything! She's been piling on the weight, a… Continue reading First night off PN
I'm sure most mums have changed their baby's nappy in all sorts of places that aren't designated baby changing facilities: under a tree in the shade on a sunny day, the back seat of the car in the pouring rain... I'm sure there's stranger experiences out there! But what happens when your baby or child… Continue reading The best baby changing facilities (and the worst!)
Today is a very very special day. Clara has graduated from surgical and is now under gastrointestinal team care. It's less than six months since she was considered unlikely to survive... she's the definition of a miracle. Our focus now is on helping her grow, develop, and live a wonderful life. Bring. It. On. We… Continue reading Graduating from surgical care
When you're pregnant, one of the things you need to consider is whether you want to breastfeed or bottle feed. You could choose both, you may have to choose one method. If you're expecting a healthy baby, you never even contemplate your baby might not be able to feed orally. When Clara was born she… Continue reading Feeding and nutrition: TPN
Wow - it's been a long time since I posted a Clara specific update. We've just been so BUSY! It's hard to know where to begin! To move and not to move It was proposed a little while ago that once Clara's surgeries were done, we would move to a different ward to start our… Continue reading Plenty of progress
It turns out Clara and I have more in common than just our chubby cheeks. I recently discovered, in my own red health record book, that I too had hearing issues as a baby, less than a year old. Back then there was no laptop to hook my brain up to, nor portable digital machines.… Continue reading My hearing test in 1992
We're now one week post operation and Clara is thriving. We had our first walk again outside of the hospital and we made the most of the opportunity to explore the back streets of the area. Something Clara has taught me is to slow down and enjoy the world around you. We've gone from exploring… Continue reading Talk of moving on to the medical ward
