Trying to meal plan is never the easiest when you're a family with food intolerances. We're not at a stage where Clara can eat what we eat, despite her doing phenomenally well with orally eating. She eats so much, so often, and will eat almost everything we give her (the only things she's turned down … Continue reading Dairy, soya, sugar free breakfast ideas
I must start by saying thank you to every single person who helped make our second ever Auction of Promises, Quiz, and Raffle Night, the huge success that it was. I absolutely could not have pulled this off on my own. We had a fantastic night! We had 15 teams turn up to pit their … Continue reading 2019 CHARITY AUCTION OF PROMISES, QUIZ, AND RAFFLE NIGHT
Tonight we host our second annual fundraising quiz night and auction. I can't believe it's been a year since we first held our event in honour of CJ's Mission, our mission to ensure that families on a medical journey with a baby receive as good as the wonderful level of care we received, if not … Continue reading Tonight’s the night – quiz night and auction
Since Clara turned one I'd been meaning to check when her next review was with her community paediatrician. The role of community paeds with Clara is to check she's meeting her development milestones, considering the start in life she had - both in terms of exposure to hard medical drugs, time spent restricted in a … Continue reading Community paediatrics development review
We all knew parenting wouldn't be easy when we signed up to it - but we all had this teeny tiny (okay, huge) feeling it would be so worth it. What has surprised me is how hard it is to know if you're doing the right thing. And especially if your baby is. I have … Continue reading What is “normal”?
Your baby is always your baby, right? No matter how little or grown up they are. Clara is 14 months old today and has noticeably grown so much in the past 4-6 weeks. We sat in Pret in the children's hospital this morning, before Clara's latest audiology appointment, and she was contently reading her book … Continue reading Hearing, talking, signing – Auditory Neuropathy at 14 months old
As Clara gets older, she's starting to show signs of her hearing and speech capabilities. But, science is science, and where there's technology to assist in diagnosis, it's always worth trying to find out a little bit more if possible. So, we revisited audiology a few days ago to see if we could learn anything … Continue reading Audiology: another attempt to understand Clara’s hearing