Since Clara turned one I'd been meaning to check when her next review was with her community paediatrician. The role of community paeds with Clara is to check she's meeting her development milestones, considering the start in life she had - both in terms of exposure to hard medical drugs, time spent restricted in a … Continue reading Community paediatrics development review
We all knew parenting wouldn't be easy when we signed up to it - but we all had this teeny tiny (okay, huge) feeling it would be so worth it. What has surprised me is how hard it is to know if you're doing the right thing. And especially if your baby is. I have … Continue reading What is “normal”?
Your baby is always your baby, right? No matter how little or grown up they are. Clara is 14 months old today and has noticeably grown so much in the past 4-6 weeks. We sat in Pret in the children's hospital this morning, before Clara's latest audiology appointment, and she was contently reading her book … Continue reading Hearing, talking, signing – Auditory Neuropathy at 14 months old
You've probably noticed, but I've had writers block. That, and settling into life has got in the way. We're now just one week from the end of January and I thought it was about time I shared an update for those of you who don't follow along our daily ramblings on Instagram. January marked my … Continue reading Finding our ‘normal’, settling into life after maternity leave
January 10th is Clara's Lifeday. It's like a birthday, except we're not celebrating her birth (oh no, that's too normal), we're celebrating LIFE. For on this day, Clara was given a chance at life. Today, a year ago, was the day we talked (very VERY briefly, ie we shut that conversation down) about palliative care. … Continue reading Happy 1st Lifeday Clara!
2018 will always be the year I truly found what life is about. It’s a strange one this year, New Years Eve. For whilst it is the end of a calendar year, and the end of Clara’s first year on earth, it isn’t the end of Clara’s medical year. On New Years Eve 2017 we … Continue reading 2018 is over, but life is only just beginning.
It's crazy to think Clara has now seen her second Christmas. That means a whole year has gone by since her story began. Christmas in 2017 was a reminder that our world had now changed (at the time we didn't know just how much!). Up until then, mid December was a blurry haze of new … Continue reading A very merry Christmas 2018