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Operation #7 A new Hickman Line

On Thursday 7th June (tomorrow), Clara is back to the operating theatre to have a new Hickman Line put in. We’ve been struggling to withdraw blood from the line for a few weeks now, and this is super important for Clara. It’s a prevention rather than cure strategy as it is flushing PN and salineContinueContinue reading “Operation #7 A new Hickman Line”

The first night at home… ever.

Tonight Clara has been allowed to trial a night at home. As in, in her actual bed. For the first time. Ever. Clara’s off PN from Saturday morning until Sunday night and they’ve allowed her to come home for the whole weekend. She’ll go back and be plugged in at the hospital tomorrow night, andContinueContinue reading “The first night at home… ever.”

Short Gut baby weaning: four months old

We’ve decided to start weaning Clara. She’s 23 weeks old, 18 weeks (4 months) corrected. Whilst official guidelines say to now wait until 6 months old, you can start weaning at 4 months old if you believe it’s right for your child. Some signs to look out for if you think your little one isContinueContinue reading “Short Gut baby weaning: four months old”

First night off PN

Tonight is the night. We are trialling Clara on a night without PN to see if she can handle a night a week off going forward. Clara’s been doing incredibly well lately, I’ve almost been too nervous to write it down as I don’t want to compromise anything! She’s been piling on the weight, aContinueContinue reading “First night off PN”

The best baby changing facilities (and the worst!)

I’m sure most mums have changed their baby’s nappy in all sorts of places that aren’t designated baby changing facilities: under a tree in the shade on a sunny day, the back seat of the car in the pouring rain… I’m sure there’s stranger experiences out there! But what happens when your baby or childContinueContinue reading “The best baby changing facilities (and the worst!)”