So I said in my last blog post that TPN breaks were some way off. Well it wouldn't be Clara if she went at 100 miles an hour and defied my expectations. Her blood cultures (after the positive) have all returned negative. So today we had a four hour break again! Clara's face below perfectlyContinue reading "It’s busy, but it’s beautiful"

Boy is this an emotional roller coaster. Only days ago I wrote: "... it should have felt like we were close to getting back to ‘normal’. Back to milk feeds, tpn breaks, and walking around the ward with my baby in my right arm and her pump stand in my left. Perhaps looking ahead toContinue reading "Feeling more like us again"

It's been a tough week. I'm exhausted. It's hard to describe the feeling, it's simply mentally draining at the moment. I spend all my time worrying about Clara that I have to remind myself to enjoy the moment. I'm sure every parent feels this, in fact I'm sure the worry never leaves: from the firstContinue reading "Recovering from stoma surgery & investigating a blood infection"

If you read the blog post before this, you'll know I knew something was up. Mother's intuition again came up trumps. Wondering what mother's intuition really is? It's just gut feeling mixed with being the one who sees your child the most. I knew she was out of character. I knew her tummy was distended.Continue reading "Operation #5 Fixing a problem and getting a stoma"

Having intensive surgery is exactly that, intense. It's not just a simple nip in and out in a 'just popping to the Co-op to get some milk, some bread, and oh yep I'll have a creme egg since they're at the till' kind of way. Clara came back from theatre on morphine, but at aContinue reading "Recovering from bowel reconnection surgery"