You’ve probably noticed, but I’ve had writers block. That, and settling into life has got in the way. We’re now just one week from the end of January and I thought it was about time I shared an update for those of you who don’t follow along our daily ramblings on Instagram. January marked myContinue reading “Finding our ‘normal’, settling into life after maternity leave”
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Happy 1st Lifeday Clara!
January 10th is Clara’s Lifeday. It’s like a birthday, except we’re not celebrating her birth (oh no, that’s too normal), we’re celebrating LIFE. For on this day, Clara was given a chance at life. Today, a year ago, was the day we talked (very VERY briefly, ie we shut that conversation down) about palliative care.Continue reading “Happy 1st Lifeday Clara!”
Caring for a baby with a stoma
I’d heard of a stoma, but I’d never seen one let alone cared for one. I’d certainly never even considered a baby might need one. Surprisingly, the majority of stomas in childhood are formed on babies – in fact, 1 in 10 need one. Clara’s stoma is an ileostomy. The ileum is the last sectionContinue reading “Caring for a baby with a stoma”
It’s busy, but it’s beautiful
So I said in my last blog post that TPN breaks were some way off. Well it wouldn’t be Clara if she went at 100 miles an hour and defied my expectations. Her blood cultures (after the positive) have all returned negative. So today we had a four hour break again! Clara’s face below perfectlyContinue reading “It’s busy, but it’s beautiful”
Feeling more like us again
Boy is this an emotional roller coaster. Only days ago I wrote: “… it should have felt like we were close to getting back to ‘normal’. Back to milk feeds, tpn breaks, and walking around the ward with my baby in my right arm and her pump stand in my left. Perhaps looking ahead toContinue reading “Feeling more like us again”
Clara and the Gutcracker 