When we were first told Clara would have immunisations at 8 weeks old it felt like AGES away. I'd heard scary things about these jabs - every mum who'd mentioned them told me she cried as much as her little one did. 'What are they jabbing these babies with?!' I wondered. In reality, and consideringContinue reading "Week 8: Vaccinations"

Well Week 8 has turned into a busy one! So many blog updates this week with progress. Today we were given a date for Clara's next operation. It's a big one, she'll likely be in surgery all day, and it's the next huge milestone. On the 8th March, 2018, Clara will have her bowel reconnected.Continue reading "Week 8: Planning for bowel reconnection surgery"

Clara has been having a 2 hour break from her TPN for just a week now. Despite this, yesterday her gastric consultant decided to up her time off her TPN to 4 hours. 4 hours!! 4 hours a day.. Of freedom!! As Clara's blood sugar levels had always remained stable, the team said I didn'tContinue reading "Week 8: TPN breaks and hearing tests"

According to The Wonder Weeks, week eight is the start of a fussy period. This is where ‘The Three Cs' – Clinginess, Crankiness and Crying kick in. And yep, they were right. Clara is more alert and aware of how she feels than ever - often only upright cuddles on my chest will pause herContinue reading "Week 8: The Three Cs"

Most people ask how we do it. How we seem to stay so strong in times like these. How we cope with the turbulence we're thrown into when we least expect it. How we don't just want to break down and cry all the time. People say we are brave. We're not brave. We're aContinue reading "Sticking together"