The procedure went well - Clara's Hickman Line is in. Clara spent yesterday recovering although she was very much her usual self almost immediately. The general anaesthetic left her feeling sleepier than usual during the day so she slept on and off for most of the day, well and truly mucking up our routine. ClaraContinue reading "Operation #3 and freedom"

Today's not just any Tuesday. It's not just Clara's 7 week birthday, or my friend's 27th birthday, it's the day we were told we would make more significant progress. Clara, as I'm sure you know by now, is fed via a Long Line - a plastic thin pipe going into the major vein in herContinue reading "Getting a Hickman Line"

Our first ever worry about a pipe blockage feels like a very very long time ago. It was so stressful, not knowing why her bowel wasn't releasing anything and wondering where it was going as a result. We are somewhat more used to it now, but that doesn't make it any less worrying. Blockages areContinue reading "Daily pipe blockages"

You're laying there asleep Clara, in your hospital bed, surrounded by the noise of banging bin lids, nurses talking, pumps whirring. Your face is turned towards the sunlight streaming in through the large window that looks out across town, across the park, across the trees. You have a peaceful look on your face - eyesContinue reading "I wonder what you’ll be"

In some ways I can't believe Clara is six weeks old today, and in others I think "Only six weeks?!" She's changed so much in that short space of term. From being a tanned premature jaundiced squishy baby to a determined little lady, so much has happened in the last month and a half, obviousContinue reading "Six weeks old: tummy time and mummy’s arms"