“It’s a long haul flight… Expect some turbulence”

"Think of this as if its a long haul flight. Currently we're cruising, but expect some turbulence. We don't know when, or how bad it'll be, or how often we hit it, we just know it'll happen", said Clara's surgeon this morning. And boy was he right. Today, Friday 26th,was one of our best days,Continue reading "“It’s a long haul flight… Expect some turbulence”"

Our new home, the Children’s Hospital

After three days of "are we/aren't we" moving today, and always being told "definitely later today", we have finally moved to our new home in the Children's Hospital. When we first visited the ward a week ago it was really overwhelming. It feels like a proper hospital, unlike NICU which was a different world ofContinue reading "Our new home, the Children’s Hospital"