Tonight Clara has been allowed to trial a night at home. As in, in her actual bed. For the first time. Ever. Clara’s off PN from Saturday morning until Sunday night and they’ve allowed her to come home for the whole weekend. She’ll go back and be plugged in at the hospital tomorrow night, andContinueContinue reading “The first night at home… ever.”
Category Archives: medical
First night off PN
Tonight is the night. We are trialling Clara on a night without PN to see if she can handle a night a week off going forward. Clara’s been doing incredibly well lately, I’ve almost been too nervous to write it down as I don’t want to compromise anything! She’s been piling on the weight, aContinueContinue reading “First night off PN”
Graduating from surgical care
Today is a very very special day. Clara has graduated from surgical and is now under gastrointestinal team care. It’s less than six months since she was considered unlikely to survive… she’s the definition of a miracle. Our focus now is on helping her grow, develop, and live a wonderful life. Bring. It. On. WeContinueContinue reading “Graduating from surgical care”
Feeding and nutrition: TPN
When you’re pregnant, one of the things you need to consider is whether you want to breastfeed or bottle feed. You could choose both, you may have to choose one method. If you’re expecting a healthy baby, you never even contemplate your baby might not be able to feed orally. When Clara was born sheContinueContinue reading “Feeding and nutrition: TPN”
Plenty of progress
Wow – it’s been a long time since I posted a Clara specific update. We’ve just been so BUSY! It’s hard to know where to begin! To move and not to move It was proposed a little while ago that once Clara’s surgeries were done, we would move to a different ward to start ourContinueContinue reading “Plenty of progress”
Clara and the Gutcracker 