Category Archives: medical

According to The Wonder Weeks, week eight is the start of a fussy period. This is where ‘The Three Cs’ – Clinginess, Crankiness and Crying kick in. And yep, they were right. Clara is more alert and aware of how she feels than ever – often only upright cuddles on my chest will pause herContinueContinue reading “Week 8: The Three Cs”

Most people ask how we do it. How we seem to stay so strong in times like these. How we cope with the turbulence we’re thrown into when we least expect it. How we don’t just want to break down and cry all the time. People say we are brave. We’re not brave. We’re aContinueContinue reading “Sticking together”

The procedure went well – Clara’s Hickman Line is in. Clara spent yesterday recovering although she was very much her usual self almost immediately. The general anaesthetic left her feeling sleepier than usual during the day so she slept on and off for most of the day, well and truly mucking up our routine. ClaraContinueContinue reading “Operation #3 and freedom”

Today’s not just any Tuesday. It’s not just Clara’s 7 week birthday, or my friend’s 27th birthday, it’s the day we were told we would make more significant progress. Clara, as I’m sure you know by now, is fed via a Long Line – a plastic thin pipe going into the major vein in herContinueContinue reading “Getting a Hickman Line”

Our first ever worry about a pipe blockage feels like a very very long time ago. It was so stressful, not knowing why her bowel wasn’t releasing anything and wondering where it was going as a result. We are somewhat more used to it now, but that doesn’t make it any less worrying. Blockages areContinueContinue reading “Daily pipe blockages”