Category Archives: medical

We’d been counting down to the 10th May, the date Clara’s reconnection surgery was pencilled in for. But the counting can stop now – her operation has been moved forward… To today! Clara’s skin around her stoma has been getting increasingly worse. The acidic intestinal waste continued to leak under her ostomy bag, sitting onContinueContinue reading “Operation #6 Another attempt at reconnection”

It’s funny how things swing in circles. It’s been all focus on Clara’s stoma but that has calmed down dramatically in the last few days. We’ve stopped recycling to give Clara’s skin a break and already the area between her stoma and mucous fistula is looking much better. It’s now time to focus our attentionContinueContinue reading “Another hearing test”

If only road miles were a thing, like air miles. We’d definitely be earning enough to hit the gold tier on the ‘in patient’ scale. The reward – a regular trip to reality. The last few days we have been home three times during the day, and today we accomplished a 45 minute drive toContinueContinue reading “Great days out but something isn’t right tonight”

The biggest challenge with Clara’s stoma has been trying to protect her skin. Because Clara only has a small amount of gut remaining, it was a fine balance between using enough gut to make a raised stoma and saving as much as possible for reconnection. An ileostomy bag should fit neatly over a stoma, stuckContinueContinue reading “Stoma: saving the skin”