Living with a child who’s dairy free, lactose free, soya free, and sugar free, you’d image we’d be living an incredibly healthy plant based vegan life style. Wrong. I’m still learning how to adapt our meals for Clara as there’s a lot of vegetables she can’t tolerate, she can’t have excess oil (we avoid panContinueContinue reading “Going sugar free in January”
Author Archives: acacia
Finding our ‘normal’, settling into life after maternity leave
You’ve probably noticed, but I’ve had writers block. That, and settling into life has got in the way. We’re now just one week from the end of January and I thought it was about time I shared an update for those of you who don’t follow along our daily ramblings on Instagram. January marked myContinueContinue reading “Finding our ‘normal’, settling into life after maternity leave”
Happy 1st Lifeday Clara!
January 10th is Clara’s Lifeday. It’s like a birthday, except we’re not celebrating her birth (oh no, that’s too normal), we’re celebrating LIFE. For on this day, Clara was given a chance at life. Today, a year ago, was the day we talked (very VERY briefly, ie we shut that conversation down) about palliative care.ContinueContinue reading “Happy 1st Lifeday Clara!”
2018 is over, but life is only just beginning.
2018 will always be the year I truly found what life is about. It’s a strange one this year, New Years Eve. For whilst it is the end of a calendar year, and the end of Clara’s first year on earth, it isn’t the end of Clara’s medical year. On New Years Eve 2017 weContinueContinue reading “2018 is over, but life is only just beginning.”
A febrile seizure in a one year old
Last night Clara experienced a febrile sizure for the first, and hopefully last, time. A febrile seizure is a period of full body convulsions caused by a high temperature, and it’s not as rare as you might think. Clara hadn’t been right for the last 48 hours. She was teething, badly, her cheeks flushed red,ContinueContinue reading “A febrile seizure in a one year old”
Clara and the Gutcracker 