Just two days ago I wrote about our trip to A&E and how we will be trialling Clara's ability to absorb nutrition via oral feeding before making the decision to stop PN completely. Well a lot can change in 48 hours. Clara's Hickman Line is coming out on Monday!! That means no more PN, noContinue reading "We are removing the Hickman Line!"
An A&E trip changed everything
Monday morning, Clara and I both woke up feeling grand. I even had time for a coffee and a play with Clara before her intravenous infusion was due to end. It was then our usual routine up: once disconnected from her PN, it was time to go downstairs and get breakfast ready. I decided weContinue reading "An A&E trip changed everything"
Short Gut baby weaning: a second attempt
From the minute weaning was mentioned months ago I was keen to get going. Turns out it wasn't as straight forward as dishing up some purée... You can read our first attempt at weaning here. The first food Clara ever tried was an Ella’s Kitchen purée pouch - organic carrot, broccoli, and sweet potato. ClaraContinue reading "Short Gut baby weaning: a second attempt"
Life at home – week one
We've been at home a week today and life is good! Clara's even had the customary first baby bath in the kitchen sink! We've really settled in as a little family and whilst we are still working out our daily routine, I think we've got the mornings nailed. Breakfast has become one of our favouriteContinue reading "Life at home – week one"
We’ve been discharged: Clara is coming home.
Only a mere six months earlier than expected! Clara has achieved the unthinkable - but then again, when hasn't she?! We've known this 'aim for home' date for a few weeks now but I've not been brave enough to share it. Just in case. You see, Clara doesn't like the D word (D is forContinue reading "We’ve been discharged: Clara is coming home."
Clara and the Gutcracker 