Category Archives: Uncategorized

It’s been a tough week. I’m exhausted. It’s hard to describe the feeling, it’s simply mentally draining at the moment. I spend all my time worrying about Clara that I have to remind myself to enjoy the moment. I’m sure every parent feels this, in fact I’m sure the worry never leaves: from the firstContinue reading “Recovering from stoma surgery & investigating a blood infection”

If you read the blog post before this, you’ll know I knew something was up. Mother’s intuition again came up trumps. Wondering what mother’s intuition really is? It’s just gut feeling mixed with being the one who sees your child the most. I knew she was out of character. I knew her tummy was distended.Continue reading “Operation #5 Fixing a problem and getting a stoma”

Having intensive surgery is exactly that, intense. It’s not just a simple nip in and out in a ‘just popping to the Co-op to get some milk, some bread, and oh yep I’ll have a creme egg since they’re at the till’ kind of way. Clara came back from theatre on morphine, but at aContinue reading “Recovering from bowel reconnection surgery”

Thursday 8th March, 2018 – Clara had her bowel reconnected. We’d known the date for weeks, it’s the first operation Clara’s had planned in advance. Contrary to what you might think, it was less worrying knowing it was coming. After all, this surgical procedure was a step in the right direction. A step towards home.Continue reading “Operation #4 Bowel Reconnection Surgery”

I cannot believe we have had Clara with us for 11 weeks already. In some ways I think how have nearly three months flown by so fast?! But then so much has happened, it’s not surprising really. In anticipation for the big operation this Thursday we’ve had a relatively quiet week. The snow didn’t deterContinue reading “11 weeks old”