Thursday 8th March, 2018 – Clara had her bowel reconnected. We’d known the date for weeks, it’s the first operation Clara’s had planned in advance. Contrary to what you might think, it was less worrying knowing it was coming. After all, this surgical procedure was a step in the right direction. A step towards home.ContinueContinue reading “Operation #4 Bowel Reconnection Surgery”
Author Archives: acacia
11 weeks old
I cannot believe we have had Clara with us for 11 weeks already. In some ways I think how have nearly three months flown by so fast?! But then so much has happened, it’s not surprising really. In anticipation for the big operation this Thursday we’ve had a relatively quiet week. The snow didn’t deterContinueContinue reading “11 weeks old”
Uncle George is cycling to Paris next week
Aged 19 I cycled into Oxford a few times. At no point did I ever contemplate cycling as far as Paris. Clara’s 19 year old Uncle George, the eldest of my two younger brothers, is doing exactly that next week… on his own! George is cycling from The Oxford Children’s Hospital on Wednesday 7th MarchContinueContinue reading “Uncle George is cycling to Paris next week”
Auditory Neuropathy Spectrum Disorder
It’s a weird coincidence I’m writing this on ‘Rare Diseases Day’. But Clara has added another string to her already medically complex bow: Auditory Neuropathy Spectrum Disorder. Auditory Neuropathy Spectrum Disorder is a hearing condition where the inner ear hears sounds normally but has trouble sending them to the brain for processing. It’s rare -ContinueContinue reading “Auditory Neuropathy Spectrum Disorder”
A waiting game
It’s been a quiet week on here, I’ve not posted much. You see the thing is, we are in a waiting game. We have been waiting to see if Clara’s gut will recover from her vaccinations. Her outputs have remained high since her jabs, a shame as leading up to her jabs she was wonderfullyContinueContinue reading “A waiting game”
Clara and the Gutcracker 