Clara has heterotaxy – a condition which means ‘different arrangement’. It commonly involves the heart and other organs, especially the stomach, intestines, spleen (often missing or in smaller pieces – Clara the latter), and liver. In Clara’s case, we knew at our 20 week scan that her stomach was on the wrong side (the rightContinueContinue reading “Heterotaxy and the heart”
Author Archives: acacia
Our surgical journey is over
This time last year we were caught up in the excitement of pregnancy. We knew tomorrow, 4th September 2017, was extra exciting because we would see our little baby again at the 20 week scan. It coincided with my brother’s birthday so it was perfect – we thought. Clara at our 20 week scan: Also,ContinueContinue reading “Our surgical journey is over”
Madlug: a life changing bag for a child
When something strikes a chord with me, it really sticks. So when I recently came across Madlug, a social enterprise supporting children in the care system, I was hooked and I just had to share it with you. After Clara’s first operation, we were told if she survived it would be a very very difficultContinueContinue reading “Madlug: a life changing bag for a child”
Clara’s nursery and the DIY feature corner
Clara’s room always had to feel special. We first ‘decorated’ the room when we moved in two and a half years ago – and by decorate I mean we ripped out the bleach stained carpet with holes in and replaced it with a high quality neutral carpet. We sanded back the Oxford United themed brightContinueContinue reading “Clara’s nursery and the DIY feature corner”
Short Gut baby weaning: 8 months old
I know every time I write it down I end up saying the same thing. But I just cannot believe Clara is 8 months old now (just under 7 months corrected if you’re being specific, she was a 35-weeker). Clara is growing up. Her development is fantastic – we have been discharged from the PhysioContinueContinue reading “Short Gut baby weaning: 8 months old”
Clara and the Gutcracker 